Primary Responsibilities Include:

• Providing insight into the pulse of disease communities and ensuring strong collaborations with patient advocacy groups.
• Engaging the Advocacy Community for feedback regarding critical decisions that will impact the community
• Building relationships and collaborating with existing and/or evolving patient associations.
• Guarding and propelling Sarepta's Patient Mission value by developing and executing patient voice initiatives
• Championing community insights, concerns and perspectives inside and outside Sarepta
• Successfully work with external patient organizations to help them grow and develop into high-functioning, sustainable organizations
• Staying current with relevant information and resources regarding industry and health care legislation, RNA and Gene therapy therapeutic development, and comprehensive disease state awareness.
• Providing updates regularly to disease communities, especially as related to clinical trial and pipeline evolution.
• Driving optimized patient engagement and contributing to the development of patient experience data
• Helping to form relationships throughout the neuromuscular community
• Oversee development and management of community-facing educational presentations and newsletter materials, building strategy to suit the changing landscape of in-person community engagement
• Ensures that all employees at Sarepta have an opportunity to learn about the patient perspective and Sarepta's commitment to the communities we serve.
• Works compliantly in interactions with patient advocates, patients, families and caregivers per internal and external guidelines.
• Responsible for project management and execution of patient affairs initiatives
• Completes administrative duties in a timely fashion
• Other related duties as required

Desired Education and Skills:

• Previous work with patients and families in the rare disease field strongly preferred
• Bachelor's degree in science, social science or related field
• Minimum of 3 years of patient advocacy experience, with 8+ years of progressive experience in a healthcare / biopharma setting
• Advanced degree in health sciences preferred
• Bilingual- English/Spanish preferred
• Strong project planning and management skills, including problem-solving and risk mitigation
• Relationship or account management skills
• Self-directed learner with an understanding of drug development and clinical program development
• A team player who will work collaboratively to support team success
• Excellent interpersonal, oral and written communication skills including strong presentation skills
• Strong PowerPoint presentation content and design skills
• Ability to relate with a diverse group of individuals and develop rapport quickly
• Ability to influence in a proactive, objective and diplomatic manner within all levels of the company and outside community leaders
• Ability to build clarity from ambiguity
• Work collaboratively, independently and with a sense of urgency
• Demonstrated ability to work under pressure and manage multiple responsibilities
• Ability to use both strategic and tactical approaches to problem-solving and multi-tasking
• Able to create a positive work environment for team to help retain and develop staff
• Recognized by former peers, colleagues, managers and direct reports for attributes congruent with Sarepta Values
• Proficient in basic computer skills and Microsoft Word systems
• Boston area location a plus, the ability to work in Cambridge, MA will be required at regular intervals moving forward.
• Travel may be significant at times, and is largely shaped by community need. Expect 30-40% travel with significant weekend involvement.

This position is remote. However, you will be expected to work on site at one of Sarepta's facilities in the United States and/or attend Company-sponsored in-person events from time to time.

Candidates must be authorized to work in the U.S.

Sarepta Therapeutics offers a competitive compensation and benefit package.

Sarepta Therapeutics is an Equal Opportunity/Affirmative Action employer and participates in e-Verify.